Kimberly Berger poses for a photo with her son, Jonah, 12, in this undated handout photo. Berger and her son travelled to Seattle, Wash., last February where he underwent proton beam therapy for a brain tumour at a private clinic. THE CANADIAN PRESS/HO, Kimberly Berger *MANDATORY CREDIT*

Experts, national parents group, call for specialized proton therapy clinic in Canada

Proton radiotherapy uses a beam of protons to irradiate cancerous tissue in children and adults

An advocacy group for children’s cancer research says it’s time Canada makes an advanced form of radiotherapy, called proton beam therapy, more widely available.

Canada is the only G7 country without a clinical proton facility — a situation that forces families to travel to the United States to seek a treatment that has been around for about a decade.

Canadians should have access to the advanced level of care that comes from proton beam therapy, said Chris Collins, chair of Advocacy for Canadian Childhood Oncology Research Network, or Ac2orn.

“This is an important and proven technology and medical treatment,” Collins said in a recent interview.

Proton radiotherapy uses a beam of protons to irradiate cancerous tissue in children and adults. In comparison to conventional radiation therapy, proton therapy delivers a higher concentration of radiation without affecting nearby organs.

Collins is a former speaker of the New Brunswick legislature who lost his 13-year-old son Sean to cancer in 2007. He said the COVID-19 pandemic is making it more difficult for families to travel to the United States for treatment.

He said the pandemic is exposing an inequity in the health-care system that would be largely addressed if there were a Canadian option.

“Proportionally, it would be good to have a centre in Vancouver, Montreal and Toronto, and to fund families who are travelling to these places,” he said.

Kimberley Berger, of Vancouver, knows how difficult it can be to access the treatment her 12-year-old son Jonah received at a private clinic in Seattle, Wash., last February.

While the B.C. health system funded the treatment, the family was on its own to pay their accommodations during the six weeks her son received proton therapy and chemotherapy following surgery for a brain tumour.

“My immediate thought when this happened was, ‘how are we going to do this?’” Berger said. “I have another son and my husband is working, we have to rent a home in another city and that is expensive.”

She said dealing with a foreign health system was an added stress.

“You don’t know how the system works and then throw a pandemic on top of it,” she said in a recent interview. “The pandemic drives it home that we need to be sustainable in Canada when something like this does happen.”

Dr. Jim Whitlock, division head of haematology and oncology at SickKids hospital in Toronto, said proton therapy is a particularly effective option for children who have brain tumours or other types of cancer.

Proton therapy, he said, is preferable for patients who have tumours at the base of the skull: “A tricky area to try to radiate and not cause damage.”

Whitlock said the up-front capital costs — estimated between $75 million and $250 million — are the main hurdle to building a proton centre in Canada.

He said there should be at least one national facility, adding that any province that decides to build one will need the help of the federal government.

The vision of building centres of excellent for expensive and uncommon therapies is one “Canada needs to embrace as a nation,” Whitlock said. “I hope the federal government will consider taking a more active role in helping address these national needs because some of these problems need to be solved at a national level.”

According to Health Canada, proton beam therapy systems are rated as Class III devices under federal regulations, meaning they must be licenced prior to importation or sale in the country.

“While Health Canada is responsible for assessing the safety, effectiveness and quality of medical devices, the availability, its use, and the funding of proton therapy in Canada fall under the responsibility of the provinces and territories,” the department said in an email.

Dr. Rob Rutledge, a radiation oncologist at the Nova Scotia Cancer Centre in Halifax, agrees that money is the issue.

Currently, the handful of patients in the Maritimes who qualify for the proton treatment are sent to the United States. But Nova Scotia, which funds the treatment, is looking at referring some patients to the Netherlands, a country Rutledge said has “excellent technology at a fraction of the cost.”

Proton treatment, however, needs to be offered to some children with brain tumours in Canada, Rutledge said, adding that the non-availability of the procedure exposes a gap in the health system.

“Pandemic aside, we need this treatment.”

Keith Doucette, The Canadian Press


Like us on Facebook and follow us on Twitter.

Want to support local journalism during the pandemic? Make a donation here.

CancerHealthcare

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

The City of Williams Lake and Cariboo Regional District are conducting a housing needs survey for Williams Lake and area. Before this new affordable housing complex on First Avenue North opened in Williams Lake in 2019, it already had a waiting list. (Monica Lamb-Yorski photo - Williams Lake Tribune)
Housing needs survey for Williams Lake and area launched

City of Williams Lake and Cariboo Regional District survey closes on Nov. 20, 2020

This Google Maps screenshot shows the Highway 97 intersection at Juniper Road that is being deactivated in South Quesnel. (Google Maps screenshot)
Juniper Road intersection being deactivated in South Quesnel

Traffic can no longer enter or exit Highway 97 at Juniper Road in a move to improve road safety

Carey and Angela Price announced the birth of their third child on Monday, named Lincoln. (Photo submitted)
Canadiens’ Carey Price, wife Angela, announce birth of baby boy Lincoln

Prior to Monday’s announcement, Carey and Angela had two daughters: Liv, 4, and Millie, 1

Williams Lake RCMP are hoping to speak with Amber Wuetz. (Photo submitted)
Williams Lake RCMP concerned for missing woman’s well-being

Amber Wuetz was last seen in Williams Lake

NDP Leader John Horgan celebrates his election win in the British Columbia provincial election in downtown Vancouver, B.C., Saturday, Oct. 24, 2020. THE CANADIAN PRESS/Jonathan Hayward
Horgan celebrates projected majority NDP government, but no deadline for $1,000 deposit

Premier-elect says majority government will allow him to tackle issues across all of B.C.

B.C. Liberal Leader Andrew Wilkinson speaks during a drive-in car rally campaign stop at a tour bus operator, in Delta, Saturday, Oct. 17, 2020. THE CANADIAN PRESS/Darryl Dyck
Andrew Wilkinson stepping down as B.C. Liberal leader

Will stay on until the next party leader is chosen

Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

VicPD and B.C. Conservation Officer Service teamed up to free two bucks who were entangled in a fishing net and dragging a wheelbarrow sized piece of driftwood behind them. (VicPD)
VIDEO: Police, B.C. Conservation help two bucks caught in one fishing net

Bucks were also dragging a wheelbarrow sized piece of driftwood behind them

A heavy police presence was spotted in Lumby, Monday, Oct. 26, 2020. (Facebook)
Police situation leads to ‘hold and secure’ at North Okanagan school

Police call for social media blackout in ongoing incident

Join Black Press Media and Do Some Good

Pay it Forward program supports local businesses in their community giving

“We have to make a call out to address this now so our people don’t have to feel fearful,” said Tribal Chief Mina Holmes. (Carrier Sekani Tribal Council Facebook photo)
Carrier Sekani Tribal Council seeks Indigenous-led task force in northern B.C. hospitals

Request made in an open letter to federal minister Carolyn Bennett

École de l’Anse-au-sable. (Google Maps)
COVID-19 outbreak forces closure of Kelowna school

The outbreak is the first within B.C.’s school system since classes resumed back in September

FILE – B.C. Lions and Toronto Argonauts owner, Senator David Braley speaks after the CFL announced Vancouver will host the 2014 Grey Cup championship football game during a news conference in Vancouver, B.C., on Friday March 8, 2013. THE CANADIAN PRESS/Darryl Dyck
BC Lions owner David Braley dead at 79

Braley had bought the CFL team prior to 1997 season

Most Read